A little
over four years ago I had some thought-provoking comments on this blog from an
ME/CFS sufferer. My post concerned speculation on ME/CFS from the perspective
of the GP. The respondent who commented said: ‘If doctors would at least show
some signs of empathy’. And I think that a very important message is contained
in those few words. I am quite sure, too, that this plea would be one made by
the majority, if not all, sufferers from the condition.
Since I
wrote that piece (‘What do doctors think of ME/Chronic fatigue?’ 11th
March 2011) I have moved on. What I mean is, I have moved on four years into my
retirement from general practice. And I have become a patient. I am not so
unfortunate as to suffer from CFS, but I have experienced similar frustration
to that complained of by those who are sufferers when they try in vain to get
their GPs to take them seriously.
I am
particularly concerned at the changes I have seen in family medicine – changes that
were already creeping in during my final years as a GP. The sort of personal
life-long care offered by perhaps the majority of GPs when I started in
practice over 40 years ago is now a rarity, and actually looks set to die out
completely. Doctors are under huge pressure and are highly regulated. I am sure
that many who read this will be all too familiar with the consultation where
the doctor barely looks at you, and instead taps data into her computer – data that
she is obliged to gather for the purposes revealing prescribing patterns, the
prevalence and incidence of this disease or that, and for her own appraisal and
five yearly revalidation. Hardly a situation that favours the development of
empathy as my correspondent so urgently wished for.
You may be
of the opinion that GPs don’t know how lucky they are. Well, in that case, why
is the NHS experiencing such a haemorrhage of GPS who have been trained at such
expense? I am in regular communication with many of them, and a pretty
miserable bunch they are, by and large.
I have been
on medication for a chronic condition for a number of years now. It is
monitored entirely by nurses at my GP practice. None of the doctors there has
the faintest idea who I am. Were I to develop new symptoms that might indicate
something seriously wrong I would expect to be put through a raft of tests
initially, possibly without an in-depth medical history or clinical
examination. On attending for follow-up I would probably see a different doctor
entirely and perhaps yet another doctor on the next occasion. And were I to
question such management I would be ‘reassured’ that this is now standard
practice and all the doctors were equally competent. But where is the ‘empathy’?
I would have
thought – and please correct me if you think I am wrong – that many of you who
are sufferers from ME/CFS will be all too familiar with this. You attend with
mystifying and frightening symptoms, and are you listened to? Is your fear and confusion acknowledged? Does the
doctor turn away from the monitor and focus his entire attention upon you?
Well, I would hope so. But I would bet my boots that this is not the common
experience.
And what
happens when the raft of blood and other tests all come back negative? What
then? Are you dismissed? Or are you referred to a clinic with a two year wait?
And if the tests do show something,
how can you or how can your doctor know that the abnormality has any relevance
at all to the symptoms you are experiencing? Disturbed kidney or thyroid
function, or a degree of anaemia showing up does not necessarily have anything
to do with the symptoms you initially took to your doctor. OK – so all the
focus will go on the results of the tests and the diagnoses that transpire but
it doesn’t mean that when these are attended to you will be all bright eyed and
bushy tailed again. What it does mean is that the doctor is distracted from
your original presentation (perhaps only too pleased to be) and it will be
pushed aside.
When I was a
GP trainer – supervising young doctors entering general practice – I required
all my trainees to justify every test they ordered and to tell me what they
were suspecting and what they expected each and every test to reveal. I daresay
that if I, as a patient, asked my doctor why she was ordering this test or that
I would be regarded as something of a nuisance at best.
No. Too many
doctors do not have the time to listen. And I have every sympathy with them.
Demand has rocketed, as have expectations. My own view is that this is largely
the result of meddling by politicians and misinformation put about by the
press.
There is a
regrettable tendency, too, for doctors to say or at least to imply that the
condition won’t kill you and there is no treatment they can offer for it, so
there is no point in coming back. And if there was one, I would say to that ‘then
God help you’.